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À propos
We are a non-profit, 501(c)(3) organization dedicated to meeting the needs of families affected by Osteodysplastic Primordial Dwarfism. Our mission is to enrich the lives of individuals with Osteodysplastic Primordial Dwarfism by facilitating opportunities for families to meet, providing for adaptive or medical needs, and furthering research efforts.
Ultimately, we seek to unite those around the world with Osteodysplastic Primordial Dwarfism. We are a network of support, as well as a place to turn in times of crisis. We will change the future of this diagnosis by promoting awareness and supporting research.
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